Thursday, March 19, 2009

One Month

I know, I know I haven't updated this blog in over a month!  Life just has a way of keeping us very busy these days.  What have we been up to?  First the happy news.  Well, we had our six month post placement home study.  Six months!  It doesn't even seem possible time has gone so fast and yet at the same time it feels like Tessa has always, always been a part of us.  She simply continues to amazing us everyday!  Tessa is a beautiful, loving, delightful, charming, mischievous, up-for-trouble-anytime-thank-you, giggly little bundle of joy!  I can't help but feel how unbelievably lucky we got the day Gladney choose Tessa for our family.  Thank you Gladney, Thank you God, Thank you cosmic forces that be for allowing us to be her parents!!   

More news on the Tessa front....six months, 31 stool samples and three rounds of medication later and we are officially GIARDIA FREE!!!!!!! WoooHooooo!!!  Here's hoping I never have to scoop poop into a tube again!!

OK, more news, not so happy news, and the real reason I haven't felt like blogging much. We recently found out that our smart, funny, wonderful and amazing little boy has Asperger Syndrome.  

It's not like we're new to dealing with developmental issues - Neilan has been receiving PT, OT and speech for fine and gross motor delays since he was 18 months old - but this year things changed.  Neilan has been struggling in kindergarten with meltdowns and transition problems and I just thought, stupid mommy that I am, that a lot of kids probably struggled like that.  I mean this child taught himself to read at three and math comes easily for him so I assumed the problems were because of the physical issues Neilan faced.  


A few days before Christmas one of his therapists suggested we have him evaluated - she had some concerns.  As soon as I got home I called my sister, a pediatric OT in Chicago, to get her opinion.  A yes or no question I asked her. Did she think Neilan had Asperger's.  Yes.  In-between my sobs Kathleen gave me the best advice she could have.  "It's OK.  Nothing has changed in the last 10 minutes. Neilan hasn't changed in the last 10 minutes. He's still the same wonderful little boy.  You just have new information to help you help him. That's it." Can I just say how amazing my sister is at hand holding over the phone.  So by the time the Developmental Pediatrician confirmed it for us two weeks ago it was far from a surprise. That's not to say that hearing the actual words, knowing this is what it's really going to be, didn't cut us to the heart - because it did.  So for now we are busy reassessing schools for next year, working on new therapeutic game plans and frankly coming to a new sense of normal for our family.
I have so much more to say but for now this is it except for one more thing - the most important thing- how profoundly grateful and lucky we feel to be this amazing,  joyful, beautiful little boy's parents!!